© 2016 by Avie Rose. Proudly created with Wix.com

Search By Tag:
Please reload

Explore 65 Roses:
About Me

October 31, 2016

I was recently given an article that appeared in Pacific Coast magazine about the Mauli Ola Foundation.  It was the title of the article that really caught my attention: "The Breath of Life"  What?!  That's what Avalyn's name means!  The article went on, "For nearly a...

October 26, 2016

I found this recipe on French Foodie Baby and thought it was perfect salty food for Avie.  Don't let the idea of baking bread scare you!  I'm not a baker, but this recipe is really easy.  She is still on the fence about the bread.... but, I wanted to post this any...

October 24, 2016

I recently had the opportunity to talk to a CF Mommy about some of the foods she tried with her 18 year old son who has Cystic Fibrosis.  She mentioned some of the foods I already knew and used, but then surprised me by saying "Liverwurst is the best".


She ex...

September 28, 2016

Babies with Cystic Fibrosis need extra salt.  Your CF doctor (probably the dietitian) will tell you how much salt, per 24 hr period, to put in the baby's formula.

Salt the formula?!  As if it doesn't already taste disgusting!

It can seem overwhelming when you are require...

Please reload