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October 31, 2016


I was recently given an article that appeared in Pacific Coast magazine about the Mauli Ola Foundation.  It was the title of the article that really caught my attention: "The Breath of Life"  What?!  That's what Avalyn's name means!  The article went on, "For nearly a...

October 17, 2016

You really never know who is affected by this disease.  The late actor-comedian, Gary Shandling, left a generous legacy gift to the CF Foundation in honor of his brother who had Cystic Fibrosis and died when Gary was 10.

You can read more about this on the Foundation's...

September 29, 2016

Okay, so for those kids living with two copies of the delta F508 gene mutation (this is the most common mutation and it's what my little Avie Rose has)- life is about to get much, much better!

The "miracle" drug, Orkambi, that was developed by Vertex, has been approved...

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